Tomorrow morning Wil has his CT and MRI. This should answer a few more questions for us about our next steps. We will also be sending copies of the scans to a doctor at Shriner's Children's Hospital in Philidelphia. This doctor was recommended to us by a friend from the Down syndrome community, Renee, who has a daughter, Kennedy, about to undergo spinal fusion for AOI and AAI. Dr. Betz has a great deal of experience in spinal fusion and has agreed to review Wil's scans. We are so grateful to him for that. And to Renee for pointing us toward him. If you have some time please say a prayer, or two, or three for Kennedy. If you take some time to read her story you will quickly see that she has been through a lot in her four years.

We will likely not get any definitive answers tomorrow but when we do I will let you know.


Mommy to those Special Ks said...

Well be praying the scans go well tomorrow!! I am so glad Dr. Betz is going to review them! Thanks for the prayers for Kennedy!

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